So sorry to read this! You're such an encouragement to the "watching world" - thank you for sharing your struggles and experiences to help us better understand. Take care, rest, feel better! Maybe even try the diet, ugh. (Some of us have a hard time knowing when and where to say the right things...fingers pointing at me.)
Did the clinician specify why a Ketogenic diet would be helpful to you in this moment? It seems incongruous timing to suggest whilst seeking acute MH crisis support. I'm an advocate of Ketogenic diet, because it really helps my energy levels and reduces inflammation which benefits my hypermobility pain enormously, but I can't really see a tie-in here and I would have felt as frustrated as you.
Hi David thank you for sharing your experience. My son just had a crisis and unfortunately where we are as a location. I feel it can be a post code lottery. He was very poorly and lost insight and I tried to get him help and medication it took 2 weeks for someone to visit and then someone else came then a psychiatrist and they could clearly see he was unwell he kept asking for meds to help him. It didn’t happen in the end he came out of it himself with support from me. We have been waiting 5 years for a crisis resolution plan. They make me feel like I’m a nuisance when I’m just advocating for someone who is unable to do it themselves as so unwell. I’m traumatised now by the system and lack of care and support my son doesn’t receive in a timely manner. He has episodes every 6-8 months and I try to stay positive there won’t be another one but I know I have to prepare for it , and all we want is a plan they have to stick to as soon as he becomes extremely unwell and help and support him in the community. I feel in our case it will never happen and it will always be down to me and it can be exhausting due to lack of sleep etc been on guard keeping him safe etc. thanks for listening and I really do appreciate everything you highlight your a beacon of hope and light for all vulnerable people with in the system as there are some good stories. But like I said I feel it’s a postcode lottery unfortunately.
Thank you for sharing your struggle. Hoping for good progress for your son, so sorry for the burden you (both) carry. Keep seeking, there may be a stone unturned and help where least expected. Hoping the current struggle will lead you to a new place with more positive outcomes.
So sorry to read this! You're such an encouragement to the "watching world" - thank you for sharing your struggles and experiences to help us better understand. Take care, rest, feel better! Maybe even try the diet, ugh. (Some of us have a hard time knowing when and where to say the right things...fingers pointing at me.)
Did the clinician specify why a Ketogenic diet would be helpful to you in this moment? It seems incongruous timing to suggest whilst seeking acute MH crisis support. I'm an advocate of Ketogenic diet, because it really helps my energy levels and reduces inflammation which benefits my hypermobility pain enormously, but I can't really see a tie-in here and I would have felt as frustrated as you.
Hi David thank you for sharing your experience. My son just had a crisis and unfortunately where we are as a location. I feel it can be a post code lottery. He was very poorly and lost insight and I tried to get him help and medication it took 2 weeks for someone to visit and then someone else came then a psychiatrist and they could clearly see he was unwell he kept asking for meds to help him. It didn’t happen in the end he came out of it himself with support from me. We have been waiting 5 years for a crisis resolution plan. They make me feel like I’m a nuisance when I’m just advocating for someone who is unable to do it themselves as so unwell. I’m traumatised now by the system and lack of care and support my son doesn’t receive in a timely manner. He has episodes every 6-8 months and I try to stay positive there won’t be another one but I know I have to prepare for it , and all we want is a plan they have to stick to as soon as he becomes extremely unwell and help and support him in the community. I feel in our case it will never happen and it will always be down to me and it can be exhausting due to lack of sleep etc been on guard keeping him safe etc. thanks for listening and I really do appreciate everything you highlight your a beacon of hope and light for all vulnerable people with in the system as there are some good stories. But like I said I feel it’s a postcode lottery unfortunately.
Thank you for sharing your struggle. Hoping for good progress for your son, so sorry for the burden you (both) carry. Keep seeking, there may be a stone unturned and help where least expected. Hoping the current struggle will lead you to a new place with more positive outcomes.